Back home again in Indiana (that's catchy, no wonder someone wrote a song about it)
We met with Dr. Skinner in Ohio before heading home today.
Home in Indiana. That's going to take some adjusting; where is "home"?
Anyway, Dr. Skinner is in favor of Kevin using Xeloda instead of 5-FU and the infusion pump. If our insurance will approve it. Apparently it's outrageously expensive.
We'll know if a few days how much the insurance will cover, if any. Kevin and I had a little chat about how much it's worth out of pocket to us. He threw out one number, I raised the ante, we settled on something else.
I figure it's worth two or three times that much for his comfort and emotional well being. Forty-six hours at a time with the infusion pump had him climbing the walls. 24/7 for weeks and weeks isn't going to do him well.
Some things are about a lot more than money. This is one. Timing sucks since I am officially unemployed now but we'll find a way.
We met Patrick, Joanie, Zelda, Johanna and Charlotte for a goodbye dinner tonight. Our usual Saturday night after Mass group. It may be a while before we get to do this again. They had a gift for us. A beautiful prayer which they all signed and Patrick matted and framed.
It's so hard to leave.
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